Former Real Housewives of Orange County star Meghan King Edmonds has had an incredible difficult past couple of months.
Only a few weeks after taking to her blog to open up about her husband Jim Edmonds’ very public cheating scandal, Meghan took to her blog to share a heartbreaking post about her 13-month-old son Hart.
In the post titled “My Hart” Meghan detailed how she knew since that “something was different with Hart” sever since she welcomed him and his twin brother Hayes back in June 2018. “The nurses struggled to straighten his legs to measure his length. He suckled hard, shallow, and often until I bled and he spit up black,” she wrote.
“I took him to a chiropractor, cranial sacral therapy. I took him to a pediatric ophthalmologist when I noticed he couldn’t see his hands and his eyes stayed crossed longer than normal,” she continued, adding that she knew something was wrong even though everyone, including their pediatrician said Hart was fine.
” I begged for a neurologist referral and when I got it – he said he was fine. I then begged for a neurologist who specializes in Cerebral Palsy (I jumped through hoops to get this appointment, so many hoops) and she said he might be fine. I then begged for an MRI.”
She continued, with the heartbreaking news of what the MRI discovered. “Three days later Hart’s neurologist called me. Hart has minor Periventricular Leukomalacia on both sides of his brain (namely the white matter), but more so on his right. She said that this explains all of my concerns: the rigidity in his muscles, the (somewhat) delayed physical milestones, the lack of fluidity with arm and leg movements, the stiffness in joints, the weakness in his lower back, the somewhat favored use of his right side. She told me this mainly occurs in premies and since he was not a premie (he was born at 37 weeks gestation) she believes this damage somehow occurred “a couple months before he was born.” She explained that he is at risk for being diagnosed with Cerebral Palsy and will be monitored. Hart has irreversible brain damage, it’s called PVL.”
She details how she immediately enrolled her son in a therapy program for developmental delays which he had previously been denied.
“That night Jimmy and I went out to dinner for the first time in weeks. I explained to Jimmy how we are not somehow compromised or punished for having a child with special needs (whatever that may or may not mean!), we are BLESSED. I will go on about this another time but just know that I do not see his diagnosis as anything but a gift: we were chosen to take on this special person. I truly feel as if we’ve doubled down and won the underdog hand. Truly.”
Meghan, who is also mother to daughter Aspen, concluded with “I pray for a miracle and I grapple with how to navigate his life. Thirteen days after his diagnosis I finally put these thoughts to paper. This is a heavy challenge as a mother: where do we go from here? This is where: one foot in front of the other. God, you’re talking to me. I hear you. Let’s do this. All of it.”